Hi Sally
So nice to 'read' you - hope you are well.
Thanks for the hug - It's all still very new to me and I am getting used to things day be day.
It is incredible how everthing can go haywire in just a few months - At Xmas I was basically - a few very rare symtoms
Now I have constant tremors in my right arm and leg - I cannot write any more (no signing Visas lol
. With the slightest bit of stress (even shopping, meeting people haven't seen for a while etc) my rigth side shakes so much that my whole body shakes and it is quite awful! have to hold onto shop counters etc ... quite embarrassing.
Anyhow luckily the Brescia Neuro Division is one of the best - so they are looking after me well. Apparently Bologna has a very good specialist centre I might take a look at.
During the wait for diagnosis phase I was craving carbs - I put 2.5 kilos .. But now I am sort of getting used to the idea - and I am back on track eating wise.
Just the thought that everything is just going to get worse and worse is quite frightening ....
Apparently early onset PD can often be very aggressive and rapidly degenerating compared to standard OAP PD.
BUT - I have started going to the gym 4 times a week - and will start swimming lengths soon in the pool .... so I AM NOT going to let this thing take the upperhand .. If I build up my muscles I am sure I will easily get past the 5 year mark when they presume the rigidity and freezing will set in ...
I can beat that
Anyhow sorry for the long post :P I'm just so frantic at the moment ....
Are you eating any whole grain stuff you can suggest ?
I got some great foods in the UK at Xmas thru an online shop - they have 'piadine' with just 4 or 5 net carbs!! and they are good.
I might order a huge shipment :P
Take care
Jen