Anyone have hypogonadotropic amenorrhea?

[angeleighia]

I am 34; have PCOS (but i'm a mother of 3). I am not diabetic but weight has always been an issue unless diet, exercise and restriction of carbs have been a part of my life.

Recently at a check up I was told my FSH & LH hormone levels were dangerously low; so now I'm being sent for genetic testing for Lynch Sydrome; MRI of the brain to check for pituitary issues; colonoscopy to check stuff there; PAP test (like normal) and Mamogram.

I have been having some rather large cysts lately and had many little ones to go along with that. at times 16-20 cysts with 3 or 4 grapefruit sized.

So the main thing with the MRI tho is this hypogonadotropic amenorrhea. Has anyone with PCOS (on these forums) been diagnosed with this?

[GlamourMom]

I do not have that but it sounds like you have been going through a lot of struggle lately with your hormones and the cysts I know can be so painful. I hope that your testing goes well and that you find out what is going on soon. Good luck to you!

[kristenv]

I was diagnosed a few years ago (mind you after 20 years of not having a period....duh!). I was producing no estrogen at all, and low amounts of FSH, LH, and testosterone.
Intersting thing was I was also severely vitamin D deficient, but thyroid panels wre in the "normal range" so endo was not anxious to treat despite a core body temp of 96.5-97.
Long and short is I corrected my Vit D with percription strength Vit D for 2 months and now daily supps (10,000 dly) and started on cytomel for my thyroid after much persuasion with the endo and a course of glucophage.

I started having periods on my own for the first time since I was 18 ( I am 42 now)
My hormone levels have come back into range etc. and I feel much better.
Don;t know if this will be helpful to you, but please do your research as you know your body best....

Good luck!